•Long Island is home to the 2 oldest Warburg Micro Syndrome patients in the world - MaryEllen and Kevin Burke.
•Funded by the UK Charities: Genetic Disorders and POPSY - the aim of this unique Conference is to:
- Improve Prognosis Information for families around the world
- Raise Awareness and
- Encourage Research into this cruel genetic condition.
•There are 1 in 230,000,000 people with WMS in the world.
•At this Event we will share experiences and learn from the inspirational ‘trail-blazing’ Burke family and their Doctors.